NEW
YORK, Aug. 13, 2024 /PRNewswire/ -- The
Jeffrey Modell Foundation (JMF), a global nonprofit
organization dedicated to Primary Immunodeficiency (PI), proudly
announced today the launch of the Global Education Network and
Information Exchange (G.E.N.I.E.) grant.
The G.E.N.I.E. grant funds educational programs with a focus on
PI to foster global collaboration, encourage meaningful dialogue,
and promote ongoing education about PI to improve the quality of
life of patients worldwide. Grant recipients will share their
research findings, patient success stories, treatment
methodologies, and more, with members of the Jeffrey Modell Centers
Network (JMCN) across the globe. This exchange is expected to
advance the field, educate peers, and inspire ongoing
collaboration.
Dr. Jordan Orange, JMF's Chief
Medical Advisor, stated, "There is a tremendous amount of progress
being made in the field of Primary Immunodeficiency, making it the
perfect time for the Foundation to launch GENIE. This initiative
clearly demonstrates the Foundation's commitment to creating new
educational opportunities for the next generation of expert
immunologists."
Co-founder Vicki Modell dedicated
her life to the PI community and was passionate about supporting
physician education. The G.E.N.I.E. grant was established to honor
her legacy and further the Foundation's mission to promote PI
awareness within healthcare systems, ensure proper access to
treatment and care, advance PI education worldwide, and inspire
cross-continental collaboration to save more lives.
"From the very beginning, the Foundation has been committed to
advancing the understanding of PI. There was a clear need for a new
program that would further enhance physician education, and GENIE
will take developments in the field to the next level," said
Co-Founder Fred Modell.
Awards will be granted on a rolling basis throughout the year
following review and approval by the grant committee.
For more information about the G.E.N.I.E. grant and application
details, please visit www.info4pi.org.
About the Jeffrey Modell Foundation
Vicki and Fred
Modell established the Jeffrey Modell Foundation (JMF) in
1987, in memory of their son Jeffrey, who passed away at the age of
fifteen, from complications of Primary Immunodeficiency, a genetic
condition that is chronic, serious, and often fatal if not
diagnosed correctly.
JMF is a global non-profit organization dedicated to early
diagnosis, meaningful treatments and, ultimately, cures through
research, physician education, public awareness, advocacy, patient
support, newborn screening, and genetic sequencing. For more
information visit https://info4pi.org/ or watch Do
Something: The Jeffrey Modell Story online, available in seven
languages.
Media Contact:
Larissa Albright
lalbright@jmfworld.org
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SOURCE Jeffrey Modell Foundation