Angelman Syndrome Foundation (ASF) is thrilled to announce that
its 2024 ASF Family Conference & Research Symposium has a
record-breaking registration of more 1,400 participants.
AURORA,
Ill., July 9, 2024 /PRNewswire-PRWeb/ --
Angelman Syndrome Foundation (ASF) is thrilled to announce that its
2024 ASF Family Conference & Research Symposium has a
record-breaking registration of more 1,400 participants. Taking
place from July 22 to July 26 at
Kalahari Resorts in Sandusky,
Ohio, this milestone event will bring together researchers,
clinicians, families and advocates from around the globe to advance
the understanding and treatment of the rare neuro-genetic disorder,
Angelman syndrome.
"We are overwhelmed by the incredible
response to this year's conference," said Amanda Moore, CEO of ASF. "The record-breaking
registration is a testament to the strength and dedication of our
community."
Angelman syndrome (AS) affects one in 15,000 live births, or
500,000 people worldwide. People with AS have intellectual,
developmental and physical impairment. Those diagnosed struggle to
walk and often suffer debilitating seizures. Daily activities such
as talking, eating and dressing are difficult, if not impossible.
Angelman syndrome has no cure.
This year's ASF Family Conference & Research Symposium will
feature leading experts presenting the latest research findings,
clinical trials and therapeutic approaches. Attendees will have the
opportunity to engage in educational sessions, panel discussions
and networking events designed to foster collaboration and support
within the Angelman community.
"We are overwhelmed by the incredible response to this year's
conference," said Amanda Moore, CEO
of ASF. "The record-breaking registration is a testament to the
strength and dedication of our community. This event is not just
about sharing knowledge. It's about connecting, supporting and
empowering each other to create a brighter future for individuals
with Angelman syndrome."
Highlights of ASF Family Conference & Research Symposium
include:
- Research Symposium: Presentations by leading scientists and
clinicians on groundbreaking research and advancements
in Angelman syndrome.
- Family Sessions: Informative and supportive sessions tailored
for families, covering topics such as education, therapies and
daily living strategies.
- Networking Opportunities: Events designed to foster connections
among attendees, providing a platform for collaboration and
support.
- Inspirational Keynotes: Talks from influential figures in
the Angelman community sharing personal journeys and
insights.
"I learned a ton at the conference. But the absolute best part
was meeting all of the moms whose kids I have cheered for, prayed
for and come to love—but who I'd never met in person," said
Betsy Black, an Angelman parent and
past conference attendee. "It was amazing to be surrounded by
people who just get it."
ASF is committed to fostering a diverse, equitable, inclusive
and accessible environment at the conference. Efforts have been
made to ensure that all voices are heard and valued, providing
scholarships and virtual attendance options to accommodate all
interested parties. For more information or to register, please
visit asfconference.org.
ABOUT ANGELMAN SYNDROME
Angelman syndrome is a rare neuro-genetic disorder that occurs
in one in 15,000 live births (or 500,000 people worldwide). Common
signs and symptoms, such as walking and balance disorders,
gastrointestinal issues, seizures and speech impairments, usually
appear in early childhood. It is caused by a loss of function of
the UBE3A gene in the 15th chromosome derived from the mother. It
shares symptoms and characteristics with other disorders including
autism, cerebral palsy and Prader-Willi syndrome. It has no
cure.
ABOUT ANGELMAN SYNDROME FOUNDATION
The mission of Angelman Syndrome Foundation is to advance the
awareness and treatment of Angelman syndrome through education and
information, research, and support for individuals with Angelman
syndrome, their families and other concerned parties. We exist to
give all of them a reason to smile, with the ultimate goal of
finding a cure. To learn more, visit Angelman.org.
Media Contact
Amanda Moore, Angelman Syndrome
Foundation, 1 317-514-6918, AMoore@angelman.org,
https://www.angelman.org
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SOURCE Angelman Syndrome Foundation